Family Care Conference
October 6-7We believe in the healing power of community, especially during these unprecedented times. That’s why we have organized this two-day virtual conference, expressly designed to bring parents and caregivers of children with serious illnesses together with leading medical, mental health and wellness professionals.
- Discover new ways to cope with stress related to caring for a chronically ill child and improve own health and well-being
- Opportunity to meet, learn and share experiences with others who have had similar challenges caring for seriously ill childrenย
- Access to new community resources
- Gain sense of belonging and decrease feelings of isolation caregivers often experience
Scroll down to see the full program below.
Thank you to all our presenters and attendees. We will share recordings from our program soon.ย
Featured Talks
Stories of Self-Care: A Prescription for Wellness
Manisha Leary, LMSW
Trauma Trained Psychotherapist
Department of Psychiatry and Behavioral Neurosciences, Wayne State University School of Medicineย
The Truth About Trauma: Finding Resilienceย
Kristin Marzolf, LCSW, SEP
Trauma Specialist & Director
The Family Resilience Group, Arlington Heights, IL
A Conference Dedicated to Families of Children with Serious Health Conditions
Day 1 – Wednesday, October 6
10:30 a.m. - 11:00 a.m.
Welcome Remarks
Why taking time to care for caregivers is needed now more than ever
Conference Chairperson Mary Ann Fithian will provide an overview of what to expect during our conference and how you can connect with presenters and other attendees.
Mary Ann Fithian
Conference Chairperson, North Star Reach
11:00 a.m. - 12:00 p.m.
KEYNOTE: Stories of Self-Care: A Prescription for Wellness
A look into the life of a caregiver
Hear three caregivers tell their personal stories of how self care has impacted their ability to care for themselves as well as their familes. With commentary from Manisha Leary, a trained trauma therapist, you”ll learn how to implement these strategies into your own journey.
Manisha Leary, LMSW
Trauma Trained Psychotherapist,
Department of Psychiatry and Behavioral Neurosciences, Wayne State University School of Medicine
Bridget Schank
Caregiver
Charlotte Matthews
Caregiver
Kathy Prout
Caregiver
12:00 p.m. - 1:00 p.m.
Lunch Break
1:00 p.m. - 2:00 p.m.
Breakout Session: A
Powerful Prayer for Self Careย
Exploring approaches to prayer
Explore how to build one’s relationship with the Creator through prayer especially when facing major life events with Pastor Vicky Lovell.ย ย
Rev. Victoria Lovell, BA, MEd, MDiv
Zion Lutheran Church in Ann Arbor & Angel Whispers Ministry
Tools to Take Your Relationship From Surviving to Thriving
How to keep relationships active when you need them most
Providing care for your child is often something you do invisibly. Your friends, family, and community are often unaware of the everyday demands of caregiving. That can cause feelings of isolation and loneliness. These feelings have a direct impact on the relationships you are in. In this session, experienced relationship counselors Karin and Dennis McNicholas will discuss strategies for keeping friendships and relationships active when you need them most.
Karin G. McNicholas, MSW, LCSW
Clinical Psychologist,
Chicago, IL
Dennis J McNicholas, ESQ.
Family Mediator,
Chicago, IL
Sibling Support
A dicussion about the sometimes forgotten sibling
Siblings are often just as impacted by the illness as the child who is sick. This session focuses on what to expect and how to be sure you are able to support the sibling though the illness.ย
Mary Ann Fithian
Conference Chairperson,
North Star Reach
Will Falzon
Sibling
2:00 p.m. - 3:00 p.m.
Breakout Session: B
EFT for Stress and Anxiety Reduction
Tapping your way to less stress
EFT or Tapping is a holistic healing approach that helps reduce stress and anxiety and allows the brain to experience a state of emotional calm and safety. In this session, learn EFT from certified Clinical EFT practitioner, Danielle Groth, and add a new tool to your self-care tool belt.
Danielle Groth
Certified Clinical EFT practitioner, Reiki Master, and Meditation Facilitator
I Am Well, LLC
Now You See Me
How to help your child become more than their diagnosis
Shavonn Burgess is a parent of a child with sickle cell and founder of Kennedy’s Village, Inc.ย By sharing her personal story, she will explore the challenges of helping your child โ and you, as the caregiver โ be seen as a whole person. Especially in the days and months immediately following a diagnosis, your child and your family may feel known chiefly by a collection of symptoms and treatments. This presentation will help parents and caregivers to see what’s next.ย ย
Shavonn Burgess
Co-Founder/CEO,
Kennedyโs Village, Inc
Nourishment for the Caregiver
How to make lasting, healthy changes
Katie Farrell, a nurse and founder of Dashing Dish, teaches how to find a balance between spiritual and physical health. In this session, Katie will demonstrate how to make some of her most delicious (and nourishing) recipes.
Katie Farrell, RN
Founder
Dashing Dish
3:00 p.m. - 3:30 p.m.
Afternoon Break
3:30 p.m. - 4:30 p.m.
PANEL: Personalized Healthcare: How to Advocate for Your Child
Practical suggestions to help you plan, guide and advocate for your child
This session will feature the perspectives of professionals who have dedicated their lives to helping children with serious health challenges. Panel will be moderated by North Star Reach’s Director of Camping Patrick Smith, MA.
Matthew Denenberg, MD
Vice President for Medical Affairs,
Helen DeVos Childrenโs Hospital
Russ Derry, MPH
Director of Education,
Epilepsy Foundation of Michigan
Rebecca Patrias, MD
Medical Director,
North Star Reach
4:30 p.m. - 5:00 p.m.
Closing Remarks
Memorable moments and what's next tomorrow
We’ll take a few minutes to reflect on the day’s themes and meaningful conversations.
Mary Ann Fithian
Conference Chairperson,
North Star Reach
Day 2 – Thursday, October 7
10:30 a.m. - 11:00 a.m.
Welcome Remarks
Caring for Our Community
A look at how we define the act of caring and how we extend that caring beyond our families to meaningful communities.
Mary Ann Fithian
Conference Chairperson, North Star Reach
11:00 a.m. - 12:00 p.m.
KEYNOTE: The Truth About Trauma: Finding Resilience
What is resilience and how to cultivate it.
Led by licensed clinical social worker Kristen Marzolf, this session will look at innovative strategies for caregivers to manage stress so that they can better care for themselves and their families.
Kristen Marzolf, LCSW, SEPย
Trauma Specialist & Director,
The Family Resilience Grp, Arlington Heights, IL
12:00 p.m. - 1:00 p.m.
Lunch Break
1:00 p.m. - 2:00 p.m.
Breakout Session: C
Yoga for Relaxation
A session for beginners
Caring for a child with medical needs can be overwhelming and isolating. It leaves us exhausted, anxious, and even depressed. It leaves us unable to give the kind of care we want to, unable to give the care we need to. In this beginner session we will learn about relaxation through Yoga. This will include 12-pose sequence that is specifically designed to provide caregivers with resilience.
Aubrey Schupbach
Founder,
Zion Well Yoga + Meditation Studio
Recharging Your Spiritual Self
Lessons for embracing your spirituality
Led by Pastor Vicky Lovell, this session will touch on several activities that are helpful for recharging our spiritual self and spiritual energy.
Rev. Victoria Lovell, BA, MEd, MDiv
Zion Lutheran Church in Ann Arbor & Angel Whispers Ministry
Grief & Reinvention
In Praise of Poetry
The author of the recently released collection of poetry, “When Our Fathers Return to Us as Birds,” shares his poems and talks about how he reframed how he told stories when he was caring for his dying father. “I had to tell the truth,” Markus says, “and poetry was the way to do it.”
Peter Markus
Poet, Novelist and Teacher,
InsideOut Literary Arts in Detroit
2:00 p.m. - 3:00 p.m.
Breakout Session: D
Life Notes: Cultivating a Creative Practice
Accessing wonder & joy in our everyday lives through writing & other creative acts
Join us for a conversation with poet, essayist, and Little Lobbyist advocate Jeneva Stone. Weโll explore ways caregivers can cultivate a writing and creative practice that can, in the words of poet Naomi Shihab Nye, become โan act that helps you, preserves you, energizes you in the very doing of it.โ
Jeneva Burroughs Stone, MFA, PhD
Poet, essayist, and advocate
Along with son, Rob, member of Little Lobbyists, a family-led organization advocating for the health care needs of children with complex medical needs and disabilities
Ami Walsh, MFA
Story Studio Director,
North Star Reach
Communication During Crisis
Tips and tactics for effective communication
In this session get working models for communication improvement. Effective communication during crisis situations is essential, learning these tatics can improve how you deal with crisis.
Karin G. McNicholas, MSW, LCSW
Clinical Psychologist,
Chicago, IL
Dennis J McNicholas, ESQ.
Family Mediator,
Chicago, IL
Epilepsy Open Forum
A community conversation
This session is dedicated to families caring for a child with an epilepsy diagnosis. Meet other parents. educators, and physicians and participate in our community conversation to ask questions, share resources, and build support for parents and caregivers.
Presented by the Epilepsy Foundation of Michigan, including featured speakers:
Louis Dang, MD
Pediatric Epileptologist,
Pediatric Neurology, C.S. Mott Children’s Hospital
Nicole Fitzpatrick
Parent of a child with epilepsy
Russ Derry, MPH
Director Education,
Epilepsy Foundation of Michigan
3:00 p.m. - 3:30 p.m.
Afternoon Break
3:30 p.m. - 4:30 p.m.
PANEL: Parents’ Guide to Coping
A conversation with counselors and parents
This panel is a conversation on coping with being a caregiver., from diagnosis to transitioning your child’s care to adulthood.
Panelists to be announced
4:30 p.m. - 5:00 p.m.
Closing Remarks
Moving forward with care
Closing thoughts, take aways and gratitude.
Mary Ann Fithian
Conference Chairperson,
North Star Reach
Our Sponsors
Our deepest thanks to our conference sponsors:


Get in touch!
PHONE
FAX
North Star Reach Camp
1200 University Camp Drive
Pinckney, MI 48169
FINANCIAL SUPPORT
North Star Reach is an independent nonprofit medical speciality camp based in Pinckney, Michigan. We provide life-changing camp experiences for children living with serious illnesses and their families, at no charge to them. You can support us today by making a donation.
Stay Connected
PHONE
North Star Reach Camp
1200 University Camp Drive
Pinckney, MI 48169
Stay Connected
FAX
FINANCIAL SUPPORT
North Star Reach is an independent nonprofit medical speciality camp based in Pinckney, Michigan. We provide life-changing camp experiences for children living with serious illnesses and their families, at no charge to them. You can support us today by making a donation.

North Star Reach is a platinum-level
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American Camp
Association Accredited
